Better Left Unsaid

mustbelieveinme: Yep this sums up living with MS for me Some...

Mon, 17 Jun 2013 16:22:56 -0400

mustbelieveinme:

Yep this sums up living with MS for me

Some one make some t-shirts?

Click through - learn more - whats your motto?

Wed, 29 May 2013 09:43:00 -0400

Click through - learn more - whats your motto?

: It's That Time Again: Final Exams and Chronic Illness

Thu, 25 Apr 2013 11:12:28 -0400

: It's That Time Again: Final Exams and Chronic Illness:

chroniccurve:

You know the drill. It’s a dreaded week and a half (or month if you start preparing in advance like some of us) for most undergraduate and graduate students, but throw a chronic illness or chronic pain into the mix and you’re in for a bumpy ride.

Gear up the tea or coffee, the pain meds, a…

Photo

Mon, 22 Apr 2013 11:45:32 -0400

what a day that will be…

Thu, 21 Mar 2013 09:47:09 -0400

what a day that will be…

MS Awareness Week

Wed, 13 Mar 2013 10:05:18 -0400

MS Awareness Week

Upcoming MS Events

Thu, 07 Mar 2013 18:34:40 -0500

03/11/2013 @ 8:00pm - 9:00pm ET

Teleconference

Patient-Centered Multi-Disciplinary Care for People with MS

03/12/2013 @ 8:00pm - 9:00pm ET

Webinar

Strategies for Safe Eating & Swallowing

get-fit-4-life: Keep going, you know it will be worth it!

Thu, 07 Mar 2013 15:42:50 -0500

get-fit-4-life:

Keep going, you know it will be worth it!

sparklebutonce: love to all my fellow MS sparklers!!! <3

Mon, 04 Mar 2013 17:13:43 -0500

sparklebutonce:

love to all my fellow MS sparklers!!! <3

Photo

Fri, 01 Mar 2013 17:44:14 -0500

MS Simulator - it does exist!

Tue, 12 Feb 2013 10:00:32 -0500

MS Simulator - it does exist!:

mustbelieveinme:

How do you explain something to someone that is not easily explainable? Compare it to something familiar.

: Chronic Illness Self Care Series: Makeup Part I

Fri, 08 Feb 2013 10:00:06 -0500

: Chronic Illness Self Care Series: Makeup Part I:

chroniccurve:

The eyes might just be the biggest giveaway when you’re in a flare. Some of us experience serious swelling around the eyes, redness of the inner waterline, bloodshot eyes, glassy eyes, deep dark circles. Some of us have lost many of our eye lashes from either disease activity or medication. It’s…

: Chronic Illness Self Care Series: Forward

Thu, 07 Feb 2013 16:51:15 -0500

: Chronic Illness Self Care Series: Forward:

chroniccurve:

I will be posting a series for the next month about make up, hair care, skin and nail care for the chronically ill! I’m so excited to share with you what I have learned over the past 4 years on this front, but I want to preface this series with a very clear message:

The last time I wrote about…

Photo

Thu, 07 Feb 2013 16:46:09 -0500

Can Do Mulltiple Sclerosis Webinar Series

Thu, 07 Feb 2013 16:40:26 -0500

Can Do Mulltiple Sclerosis Webinar Series:

February 12, 2013: 8:00 – 9:00 p.m. Eastern Standard Time
Support for the Partner
Presented by Can Do MS Programs Consultant David Rintell, Ed.D.
This webinar will address Support Partner issues and questions and will be facilitated by one of Can Do MS’s lead psychologist Programs Consultants.

The Long Wait

Tue, 29 Jan 2013 16:41:00 -0500

The Long Wait:

The filmmaker Jason DaSilva reveals the challenges for the disabled in navigating New York City’s public transportation system. Jason has MS and uses a scooter.

Researchers Recruiting 5,000 First-Degree Relatives of People with MS for Genetic/Environmental Research Study

Tue, 22 Jan 2013 10:00:25 -0500

Researchers Recruiting 5,000 First-Degree Relatives of People with MS for Genetic/Environmental Research Study:

Jan 14, 2013

Researchers from the Harvard Medical School, Brigham and Women’s Hospital, and Partners Multiple Sclerosis Center are recruiting 5,000 subjects who have at least one first-degree relative with a diagnosis of MS. The goal of the study is to identify the genetic, environmental and immune profiles that may increase a person’s risk of developing MS. A first-degree relative could be a parent, sibling, or child of a person with MS, and the study is limited to those between 18 and 50 years of age. The GEMS (Genes and Environment in MS) study is led by primary investigator Philip De Jager, MD, PhD, a Harry Weaver Neuroscience Scholar of the National MS Society, and co-investigator Zongqi Xia, MD PhD, a recipient of the National MS Society and American Brain Foundation Clinician Scientist Development Award.

2013 Employment Teleconference Series: Career Decisions and MS

Tue, 08 Jan 2013 12:41:00 -0500

2013 Employment Teleconference Series: Career Decisions and MS:

We are pleased to present a series of teleconferences on a variety of topics regarding Employment and MS. The series is made up of six teleconferences held on Wednesdays from January through March, 2013.

Topics and Dates:

January 16 - Should I Work from Home or Start My Own Business?

January 30 - Is it Time? Deciding to Change Careers or Stop Working

February 13 - Deciding How to Plan Your Job Search. Employers Share How They Find Employees

February 27 - Should I Work? Work from Home Options for People on Social Security Disability

March 13 - The Impact of Health Insurance on Career Decisions

March 27 - How to Talk About MS to Your Employer

To register by phone for any calls in the series, call the National MS Society at 1-800-344-4867 at least one week prior to the call(s) in which you would like to participate.
You can also register online by clicking the link.

Multiple Sclerosis Symptoms and Winter Weather

Fri, 04 Jan 2013 10:00:20 -0500

Multiple Sclerosis Symptoms and Winter Weather:

mostlyokay:

Most of us with multiple sclerosis are heat intolerant to the point of being unable to function outside during peak summer temperatures. When I asked people with MS on my blog what their MS temperature “limits” were, I was surprised that many people came back with answers lower than I would have expected – most said that 80 degrees was pretty much their cutoff for comfort and that 55- to 70-degree weather was really ideal.

However, it got even more interesting when several people said that while hot temperatures were not good, the cold wasn’t so great for them, either.

Many people wrote in to complain of increased spasticity in the cold weather. Readers mentioned that their limbs “felt like wood” or that their joints ached during lower temperatures. A couple of people also mentioned that the MS “hug” could be intolerable in the cold. (The MS hug is the gripping feeling around the torso that is caused by a lesion in the spinal cord that results in spasms in the tiny muscles between the ribs.)

I also know that some people living with MS tend to feel more fatigued in winter months. This could be an indirect result of coping with some of the symptoms mentioned above. It could also be that the shorter days and limited sunlight are exacerbating depression, which can be a symptom of MS.

Read more…

Since I am experiencing fatigue, neuropathic pain, tingling, and spasticity this winter, found this article interesting.

Great article addressing those of us who also suffer with cold intolerance.

Multiple Sclerosis Assessment Tool

Tue, 18 Dec 2012 10:07:20 -0500

Multiple Sclerosis Assessment Tool:

Assess your condition so you can better understand how to approach treatment options